Stroke Training and Awareness Resources (STARs)


Your own thoughts, experiences and feelings CONTINUED

Think about your last few conversations at end of life care with patients and families. What did you find most difficult?

  • Not sure what to say or how to put into words that their family member is dying or likely to die soon
  • Outcome and timing of the dying process was uncertain so you couldn’t give an exact trajectory or a timescale when family ask
  • Family were very upset, distressed, emotional, angry and this was difficult to deal with at the time
  • You were unaware of what the family had previously been told by other members of the healthcare team – not certain if they had been told the patient was dying
  • Family had unrealistic expectations of what treatment options were available for someone who is dying
  • Explaining that some treatments will not work and may be distressing to the patient when they are dying – such as CPR
  • How to be sensitive yet giving difficult information at a pace and level which family will be able to understand
  • Discussing nutrition and hydration when the patient has a swallowing difficulty or is refusing food and drink

Page last reviewed: 16 Jan 2023